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| DebRA
International Completed Research Projects |
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| [researchmen.htm]
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Creation of an EB squamous cell carcinoma tissue
bank. Ref: Tissue bank 1 |
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| Name of Researchers: |
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Prof. Leena Bruckner-Tuderman,
Prof. John McGrath, |
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| Places of Research: |
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University of Freiburg, GermanySt
John’s Institute of Dermatology, St Thomas’ Hospital, London |
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Approved by DebRA
Medical & Scientific Advisory Panel: |
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Budget approved by
DebRA central Committee: |
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| Date Commenced: |
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1 January 2004 duration 2years |
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SUMMARY OF RESEARCH BEING UNDERTAKEN
The advances in the treatment
of symptoms of EB have led to improved quality of life for many people with EB.
Unfortunately, many people with recessive dystrophic EB are at risk from skin cancer
although the reasons for this increased incidence are unknown. Development of new ways to
treat this complication of the disease is needed.
DebRA is funding a number of research projects to help
understand the process whereby people with RDEB are so prone to these tumours. A supply of
tissue removed from patients is needed by many of the groups undertaking this research,
which can be difficult to obtain.
This project will establish a central database of where
suitable tissue is stored and to set up a number of decentralised tissue storage
facilities in several European countries. The first two years will be a pilot project to
establish the protocols in two centres in the UK and Germany before rolling out to other
countries
FINANCIAL SUMMARY
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Year 1 |
Year 2 |
Total |
| Staff |
40,000 |
40,000 |
£ 80,000 |
| Consumables |
30,000 |
30,000 |
£ 60,000 |
| Management @5% |
3,000 |
3,000 |
£ 6,000 |
|
73,000 |
73,000 |
£ 146,000 |
NB These figures are
approximate, pending receipt of the final proposal.
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