The first DEBRA group was founded in the UK by a group of parents whose children were affected by Epidermolysis Bullosa (EB). The original aims of the charity were to stimulate knowledge of, and interest in, EB for the benefit of those with the condition and their families and to fund medical research into EB. From these humble origins DEBRA has grown significantly with DEBRA groups now having been established in about 40 countries around the world. DEBRA International is an umbrella group whose members are the national associations representing people with EB in their countries. All member groups are autonomous, choosing to work together on matters of common interest. Europe, North America and Australasia are well represented amongst the member groups and there is a growing membership in Central and South America, Asia and, to a lesser extent, Africa.

Vision

To ensure that people living with EB have access to the best quality support and medical care while also driving the development of effective treatments and cures for EB.

Mission

To ensure that anyone living with EB has access to the best quality support, medical care and treatment.

To advance research efforts internationally into the care, treatment of and cure for EB.

To raise awareness and understanding of EB amongst health professionals and the general public worldwide.