All member groups are autonomous, choosing to work together on matters of
common interest. Europe, North America and Australasia are well represented amongst
the member groups and there is a growing membership in Central and South America, Asia
and, to a lesser extent, Africa.
DebRA International has
no staff of its own and all of its resources come from the member groups who contribute
whatever time and facilities that they can. DebRA International is managed by DebRA UK,
which provides office accommodation and other assistance. |
DebRA
International grew out of DebRA Europe, which was the first regional grouping within the
organisation. DebRA International is currently consulting with member groups concerning
the future structure of the organisation and whether further, regionally based sub-groups
should be established. DEBRA Latin America, the only other regional grouping,
was established in October 2005.
|
 |
An annual
meeting is held involving all member groups to determine policy and priority and the
delegates from the member groups, acting collectively, form the governing body. DebRA
Europe participates in DebRA International activities and, in addition, organises its own
events. DebRA Europe is managed by DebRA UK, whose director is also the director of the
European organisation. The direction of DebRA Europe is determined by an Executive
Committee whose current membership is:
| President:
Vice President:
Treasurer:
Member:
Member:
Member:
Member: |
Guy Verdot (France) Rainer
Riedl (Austria)
Vlasta Zmazek (Croatia)
Michael Griffith (Ireland)
Heidi Ellingsen Silseth (Norway)
Evanina M Makow (Spain)
Graham Marsden (UK) |
All members of the Executive
Committee, except one, either have EB themselves or are the parent of a child with
the condition.
For more information, contact either the national
contacts or:
John Dart,,
DebRA International,
DebRA House,
13 Wellington Business Park,
Dukes Ride,
Crowthorne,
Berkshire, RG45 6LS,
United Kingdom.
Tel: +44 (0)1344 771961
Fax: +44 (0)1344 762661
Email: john@DebRA.org.uk
