About DebRA
Description Objectives Brief History Activities Member Groups
Subsidiary Objectives
To collect and disseminate information To exchange information between support groups To facilitate the availability of reliable information concerning EB and its treatment To increase public awareness of EB To stimulate research into the causes, diagnosis and treatment of EB and to promote public understanding of the importance of that research To voice and promote the views of members on issues of common concern To represent the members in European and international bodies and organisations To encourage the formation of new national EB support groups To develop programmes of common interest To do all other things as will further the aims of the organisation To raise funds and invest them, to appoint staff and incur necessary expenditure.
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DebRA House 13 Wellington Business Park, Dukes Ride, Crowthorne, Berkshire RG45 6LS Telephone: +44 (0) 1344 771961 Fax: +44 (0) 1344 762661 DebRA is a registered charity. Registered Charity No: 1084958 © DebRA international all rights reserved 2002