Q. Should children with EB Simplex attend a specialist centre? A: Although there is yet no product to stop the blisters from forming, being able to talk openly to a doctor with knowledge of such problems and who will believe the history must be of enormous benefit to some families. Advice can be given regarding footwear and friction relieving products as well as information on mobility, benefits and allowances.

Q. "Do all types of EB have the same dressings?"

A. Dressings used for the Dystrophic and Junctional forms of EB are generally highly unsuitable for those with EB Simplex as they tend to be bulky and therefore generate a lot of heat.

For example, those with the Dowling Meara form of EB Simplex should try to use a minimal amount of light dressings and only dress actual wounds, rather than blistered areas.

Many people prefer to avoid dressings wherever possible.

Q: Are EB Simplex blisters painful?

A: Yes!

Advice can be given regarding pain relief after careful consultation to find the correct drug to suit the individual life-style.