• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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We need you

In addition to clinical experts, we need people who live with EB (those with EB, parents or carers) to play a role in the development of the guidelines.

This is to ensure that the recommendations arrived at through the guideline process are relevant and realistic for the people they are intended to help.

You do not need to have any formal medical knowledge or training, but your experience in the day-to-day management of EB will be very valuable.

If you would like to contribute by participating in a panel reviewing draft guidelines, please get in touch with Dr. Kattya Mayre-Chilton.