Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.
Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna
Dr Kattya Mayre-Chilton (DEBRA International CPG Coordinator)
| Topic | Status | Responsible for guideline | Countries leading | Funder(s) | Publication date |
|---|---|---|---|---|---|
| Nutrition: Constipation | Final draft submitted to publication | Lynne Hubbard Rose Jones | UK | DEBRA UK DEBRA International | Submitted 2018 |
| Occupational Therapy | Responding to reviewer feedback | Jennifer Chan Amy Weissman | USA | DEBRA of America | Estimated 2018 |
| Psychosocial | To email out to get reviewer feedback | Dr Kate Martin | UK Belgium | DEBRA Norway | Estimated 2018 |
| Podiatry | Started writing | Dr Tariq Khan | UK | DEBRA UK | Estimated 2018 |
| Laboratory Diagnosis | Appraisal stage | Professor Cristina Has Dr Lu Liu | Germany UK | DEBRA Austria | Estimated 2019 |
| Physiotherapy | Appraisal stage | Amy Weissman Jennifer Chan | USA | DEBRA of America | Estimated 2019 |
| Hand Surgery and Rehabilitation Therapy | Appraisal stage | Rachel Box Roger Cornwall | UK USA | DEBRA UK | Estimated 2019 |
| Anaemia | Exploring Best Practice Consensus survey | Dr Irene Lara-Corrales | Canada | DEBRA Canada | Estimated 2019 |
| Pregnancy, Childbirth, and Aftercare | Preparing for meeting for PICO | Dr Danielle Greenblatt | UK | DEBRA UK | Estimated 2020 |
| Sexuality | Preparing for meeting for PICO | Alex King Humphrey Hanley | USA New Zealand | DEBRA Norway | Estimated 2020 |
| Oral Health Care (Review) | Preparing for meeting for review changes | Dr Susanne Krämer | Chile | DEBRA UK | Estimated 2020 |
DEBRA International is a registered charity: ZVR 932762489
office(at)debra-international.org
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