• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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  • Welcome to DEBRA International. We are the umbrella organisation for a worldwide network of  national groups that work on behalf of those affected by the rare genetic skin blistering condition, Epidermolysis Bullosa (EB).

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    Apply for DEBRA International Grants now!

    Submit your applications between 1st-31st October inclusive:

    EB2020: 1st Global Congress on Epidermolysis Bullosa
    This ground-breaking meeting will, for the first time, bring together all global knowledge in EB research, clinical management and the EB community.
    More information

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    Research into EB
    Although there is currently no cure, a lot is going on in EB research and therapy development. Find here research news, and information on our research priorities, funding for research, and ongoing clinical trials.

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    For patients and carers
    Find practical information and guidelines on the tasks and challenges you may face in living with EB or caring for someone with EB as well as links to the EB Online Community.

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    For medical professionals
    Become involved in the development of Clinical Practice Guidelines (CPGs) for EB, find information on professional training courses, and join a growing network of EB experts with EB-CLINET.

    Media center
    Find videos about EB and research, real life EB patient stories, and promotional videos and images of our campaign "This is how life feels to people with EB".

  • Keep up to date with all the latest on DEBRA.
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    Keep up to date with the DEBRA Newsletter.
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    Events

    • 19-23 January 2020
      London, UK
      EB2020 - 1st Global Congress on EB
      Find out more

    Annual Review 2017

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