• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Composite of 6 images. (1) Family with a child with EB sitting on the woman's lap; (2) male EB patient getting a dental treatment; (3) Wounded face of a baby girl with EB; (4) Fingers with blisters and wounds; (5) Hand and lower arm of an EB patient; (6) People in a meeting room


A focus on the Centre for Human Genetics, Bangalore, India

Dr Ravi Hiremagalore reports his experience of establishing a multi-disciplinary clinic and services available for the care of EB patients in Bangalore, IndiaRead more

Conference room, Powerpoint presentation and John Dart as a speaker on the podium


A spotlight on rare diseases for three days in Berlin

The EURORDIS membership meeting and the European Conference on Rare Diseases (ECRD) were held back-to-back in Berlin, and EB was well representedRead more

2 images; left: Arabella von Gelmini-Kreutzhof (ambassador of DEBRA South Tyrol), holding a butterfly statuette, and Isolde Mayr faccin, president of DEBRA South Tyrol, presenting a document // right: close-up of  butterfly trophies from DEBRA CR


Two anniversaries - one mission

Both DEBRA Czech Republic and DEBRA South Tyrol celebrated their 10-year anniversaries this month. We warmly congratulate them!Read more

Jury meeting in a conference room


DEBRA supporting research: an update

For our current call for EB research proposals, an exceptionally high 18 applications have been received. In parallel, planning for our next research conference is underway.Read more

Chalkboard with "Stamina?" written on it


Unproven cell therapy from the Stamina Foundation in Italy now being re-evaluated

Leading stem-cell experts raised strong concerns about a treatment by the Stamina Foundation in Italy. It must now prove safety in a clinical trial.Read more