• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Haematopoietic stem cell transplantation in the Netherlands for severe generalized RDEB

A new therapy that may improve the condition is allogeneic haematopoietic stem cell transplantation (HSCT) with a survival rate of 80-85%. Read more

word cloud around the DEBRA "Clinical Research Call 2015"


Anticipated DEBRA funding of three clinical trials for severe RDEB

Expert evaluation for the Clinical Research Call 2015 has led to recommendation of three clinical trials targeting priority medical needs in RDEBRead more

Group of people (some are disabled) at the beach


Well deserved vacations for Chilean EB Families

We visited our patients and their families in their vacations and learned the significant contribution that this experience has on their quality of lifeRead more

Cover of the publication and portrait of Dr. Jemima Mellerio


Valuable clinical practice guideline on the management of cancer in EB published

We are delighted to announce the publication of a clinical practice guideline on the management of skin cancer in people with severe EBRead more

Portrait of a lady with long dark hair


A note from the new president, Cinzia Pilo

Starting her term with a grateful look back at the recent DEBRA and EB-CLINET conferences, and an enthusiastic approach towards the futureRead more