• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Word cloud, including "Inclusive", "Involvement", "EB", "DEBRA", "Scientists", "Patients", "Therapies" etc

02.07.2015

Keeping people living with EB at the heart of research

Deciding which EB research to fund is a meticulous process: Bringing the patient voice into this ensures that people living with EB are at the heart of all we do. Read more

Group picture: Workshop attendees

01.07.2015

Guiding the guideline developers

DEBRA International is leading the development of clinical practice guidelines for EB. Those developing the guidelines are now getting useful guidance, too.Read more

Logo of the GENEGRAFT research programme

02.06.2015

Progress in developing a skin-grafting gene therapy for RDEB

GENEGRAFT project has developed a safer vector for collagen 7 gene correction, and is now planning a small clinical trial to assess tolerability and efficacyRead more

Stack of conference programmes on a table, showing an image of the DEBRA campaign: An animal half rabbit, half hedgehog; above it the tagline "This is how life feels for people with EB"

07.05.2015

EB 2015 - Insights into the EB research symposium

This key event of EB research brought together many of those committed to find a cure, or to alleviate the symptoms of EBRead more

Doctor, mother and child with EB in a wheelchair inside the new buidling

06.04.2015

Home is where your heart is: New DEBRA House in Chile

DEBRA Chile received an old house located in Ñuñoa (Santiago) and has tranformed it into a specialist centre for people with EBRead more