• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

donate now
Icon: "blue butterfly"


Topical cream for all EB types: Clinical trial now recruiting participants

Phase 3 trial of Scioderm’s topical cream for all EB types is planned for 8 sites across Europe, as well as 6 sites in the USARead more

Word cloud, including "Inclusive", "Involvement", "EB", "DEBRA", "Scientists", "Patients", "Therapies" etc


Keeping people living with EB at the heart of research

Deciding which EB research to fund is a meticulous process: Bringing the patient voice into this ensures that people living with EB are at the heart of all we do. Read more

Group picture: Workshop attendees


Guiding the guideline developers

DEBRA International is leading the development of clinical practice guidelines for EB. Those developing the guidelines are now getting useful guidance, too.Read more

Logo of the GENEGRAFT research programme


Progress in developing a skin-grafting gene therapy for RDEB

GENEGRAFT project has developed a safer vector for collagen 7 gene correction, and is now planning a small clinical trial to assess tolerability and efficacyRead more

Stack of conference programmes on a table, showing an image of the DEBRA campaign: An animal half rabbit, half hedgehog; above it the tagline "This is how life feels for people with EB"


EB 2015 - Insights into the EB research symposium

This key event of EB research brought together many of those committed to find a cure, or to alleviate the symptoms of EBRead more