• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

donate now
Icon: "blue butterfly"


Exciting research development in EB stem-cell treatments

Three research groups from around the world have simultaneously published promising results in developing a new therapy technology called 'iPSC' for EBRead more

Cover of the first issue of the DEBRA Portugal newsletter


DEBRA Portugal launches newsletter

To celebrate the 4th anniversary, DEBRA Portugal released its inaugural newsletterRead more

Group picture of Spanish families living with EB


A focus on DEBRA Spain: Bringing the families together

After 22 years, the DEBRA Families National Meeting is going from strength to strengthRead more

Jonathan Pitre, with naked torso (wounded and with blisters), and his mother, against black background


'It's unreal': Story of Canadian boy with EB goes viral

DEBRA Canada's patient ambassador Jonathan Pitre creates international awareness with launch of EB Ambassador Wish CampaignRead more

Cover of Pain care guideline; portrait of Dr. Kenneth Goldschneider


EB pain care clinical practice guideline now available

We are delighted to report that the EB pain care clinical practice guideline has been published and is available on the websites of EB-CLINET and DEBRA International.Read more