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    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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04.11.2014

A focus on DEBRA Spain: Bringing the families together

DEBRA Spain gathers families from all over the country, once a year, with the objective of creating long-term and 'essential' networks between people with EB, family members, health professionals and researchers, enabling the opportunity for people to learn from and help each other.

Parents and caregivers always gain a lot from meeting others who face the same challenges, and parents of new-born babies are reassured by other, more experienced parents. They can compare notes, discuss the pros and cons of various treatments and products, and know there are others who really understand what they are going through.

At this year's family meeting in October, people of all ages and generations shared a mixture of presentations, workshops and activities. EB specialists offered the families the opportunity to learn about the condition, share experiences, increase their knowledge of EB and improve their overall well-being. The meeting had a record number of 70 families (220 people) attending and everyone returned to their homes feeling they had had an unforgettable weekend.

Minerva Quijera, DEBRA Spain

Group picture of Spanish families living with EB