• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

donate now

10.12.2014

Julie's butterfly: A novel about EB, love and vulnerability

Novelist Greta Milán tells a delicate story about the young woman Julietta falling in love with Bastian, who lives with EB.

When attractive Julietta first meets aloof photographer Bastian, she has butterflies in her stomach. She soon finds out that the young man lives with a rare genetic skin condition that makes his skin easily break at the slightest touch. Bastian has had a lot of pain and rejection, and while his thoughts are full of self-doubt, Julie tries to get through to him and win his trust.

This is the first novel of Greta Milán, and it took her three years to complete it, talking to families living with EB and medical experts. Resulting is an inspiring piece of work, and a rather unusual way to look at EB. The book was first published in German, and Dagmar Libiseller of DEBRA Austria has read it promptly. Her rating: Certainly worth reading! It is now also available in English – check out the options on Amazon.

Barbara Dissauer, DEBRA Austria and DEBRA International

Cover of the novel "Julie's butterfly": Woman's portrait (beautiful woman with long brown hair) and a butterfly