• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Valuable EB without Borders project strengthened by new appointment

The new International Coordinator, Lea Prujean, has been working with DEBRA New Zealand for nearly three years. She will now support the work undertaken by the Regional Ambassadors of DEBRA International's EB Without Borders (EBWB) initiative.

"I am very pleased to have begun in the role of EBWB International Coordinator and I look forward to working with you. I hope to meet many of you at the DEBRA International Congress in September. I have been working part time with DEBRA New Zealand for nearly three years and am an ardent supporter of all the things DEBRA does. I hope that through the establishment of the EBWB International Coordinator position, I will be able to support and assist the vital work undertaken by the EBWB Regional Ambassadors.

I have two children aged 22 years and 16 years. With my husband working for the New Zealand Ministry of Foreign Affairs and Trade, we lived in Russia for three years, and later in Madrid, Spain, for four and a half years. I have been working for DEBRA NZ since our return to New Zealand.

Having lived in various places, I am very aware of different cultural backgrounds, and I truly enjoy working with people from all over the world. In my new role, I am handling requests for support from people living with EB, as well as doctors who take care of EB patients for the first time.

EB Without Borders is a core initiative of DEBRA International: its mission is to help patients, families and doctors in countries where there is no DEBRA structure to support them and to assist new groups to form and develop. If I can be of any assistance please do not hesitate to contact me."

Lea Prujean, DEBRA International, EB Without Borders International Coordinator

Portrait of Lea Prujean, a lady around 40, with long brown hair, and wearing glasses

Lea Prujean, EB Without Borders International Coordinator