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Research News


EB researchers break new ground with skin graft trial - what does this all mean and what happens next?

We've thought of some of the answers to questions you may have regarding this exciting researchRead more


EB researchers break new ground with skin graft trial

An international team of researchers has broken new ground with a pioneering skin grafting procedure, reconstructing a fully functional outer skin – or epidermis – for a child suffering from a severe, and often fatal, form of Epidermolysis Bullosa (EB) – a genetic skin condition that causes constant pain due to unstoppable internal and external blistering. Researcher Michele De Luca and...Read more


Castle Creek Enrolling EB Simplex Patients in DELIVERS Study of Diacerein 1% Ointment (CCP-020)

Potentially disease-modifying therapy may block inflammatory signaling pathway, which could strengthen epidermal tissue and support healing.Read more


5th and 6th of December: DEBRA Austria and DEBRA UK - Wound Healing in EB roundtable meeting in London

Full Report on Wound Healing in EB Clinical Research Review and Priority-setting Consensus MeetingRead more


Amicus Phase 3 Study in EB (ESSENCE) Nearing Completion of Enrolment

It is anticipated that patient enrolment will close in the coming weeks.Read more