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    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Research News

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Researchers find novel gene correction model for epidermolysis bullosa

A research team at the University of Minnesota have discovered a new way to repair genetic defects in EB skin cells Read more

Screenshot of the video "Future of treatments for EB", showing Prof. John McGrath (King's College London)


The future of treatments for EB

A video on the future of treatments for EB is now available on YouTube and EURORDIS TVRead more

Composite of 4images: Dr. Anil S. Jina (Shire) presenting at the DEBRA Ireland family day and some of the families enjoying the butterfly garden.


Shire attend DEBRA Ireland family day

Global specialty biopharmaceutical company Shire, who is developing an protein therapy for DEB, presented at DEBRA Ireland's family day.Read more

Pills Spilled Around A Pill Bottle


Pharmakovigilance: An active role for rare disease patients

New EURORDIS website section focusing on Pharmacovigilance helps rare disease patients report problems with their medicinesRead more

Logo of IRDiRC (International Rare Diseases Research Consortium)


200 rare disease therapies by 2020

The 1st IRDiRC conference brought together researchers and organisations investing in rare disease research to achieve two main objectivesRead more