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Research News

Logo of the European Rare Disease Organisation EURORDIS

22.02.2013

EURORDIS Policy Discussion Meeting: "The Transparency Directive"

Faster Access to Medicines for Rare Disease Patients. Watch the meeting on 26 Feb 2013 live on EURORDIS TVRead more

Mark de Souza of Lotus Tissue Repair

11.01.2013

Large pharmaceutical spotlight on EB

Big pharmaceutical company Shire, with strong focus on rare human genetic diseases and considerable expertise in protein replacement therapies, acquires Lotus Tissue RepairRead more

Hand holding a pipette with drop of liquid

27.11.2012

First gene therapy approval

First ever approval for a gene therapy may pave the way for EB gene therapiesRead more

Group picture of participants of EB 2012, DEBRA International EB research conference

19.11.2012

EB 2012: DEBRA International EB research conference

Outcomes and future of EB research have been discussed and evaluated among the leading EB research teams.Read more

Icon "blue butterfly"

13.11.2012

Cell-based therapies for epidermolysis bullosa – from bench to bedside

Journal of the German Society of Dermatology: Overview on cell-based approaches in EB that have recently been tested in pilot clinical trialsRead more