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22.02.2013

EURORDIS Policy Discussion Meeting: "The Transparency Directive"

In celebration of Rare Disease Day 2013 and in line with this year's Rare Disease Day slogan: Rare Disorders without Borders, EURORDIS is co-hosting a policy event to examine how policy measures can help improve access to therapies for rare disease patients.

Enhancing transparency around medicinal product pricing and reimbursement decisions in order to obtain faster, more equitable access to medicines for patients will be discussed in the context of the EU Transparency Directive on medicinal products, in view of the Parliament's second reading. 

Co-host of this multi-stakeholder event, Rapporteur on the Transparency Directive Antonyia Parvanova (Environment, Public Health and Food Safety Committee) says, "Updated rules for a fair and transparent process on the pricing and reimbursement of medicines is to benefit all patients, and in particular the ones suffering from rare diseases. Availability and access to treatment is of crucial importance when we talk about rare diseases, and we should keep on upholding this principle throughout the upcoming legislative process. Our goal is to bring more transparency but also to support Member States for an efficient and evidence-based decision making process, which should ultimately support the sustainability of national healthcare systems, delivering for all."

Download the draft programme on the EURORDIS website

Join the meeting's live stream on EURORDIS TV

Find out more about Rare Disease Day

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