• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

donate now

Useful organisations


NORD (National Organization for Rare Disorders), a US-based organisation, is a federation of voluntary health organisations dedicated to helping people with rare (orphan) diseases and assisting the organisations that serve them.

NORD is committed to the identification, treatment, and cure of rare disorders through programmes of education, advocacy, research, and service.


EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe.

Currently, EURORDIS represents more than 510 rare disease organisations in 48 different countries (of which 24 are EU Member States), covering more than 4,000 rare diseases and representing about 30 million rare disease patients in Europe.

Logo Orphanet

Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences. The aim of the organisation is to help improve the diagnosis, care and treatment of patients with rare diseases worldwide.