• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Disclosure statement in accordance with Sec 25 Austrian Media Act (MedienG) and information statement in accordance with Sec 5 Austrian E-Commerce Act (ECG)

Owner/Editor

DEBRA International, Global Network of Epidermolysis bullosa Support Groups (globales Epidermolysis bullosa Selbsthilfe-Netzwerk)

Registration number

DEBRA International is a registered charity: ZVR 932762489

Registered Office /Address

Am Heumarkt 27/1
1030 Vienna, Austria
T +43 1 876 40 30
F +43 1 876 40 30 - 30
office(at)debra-international.org
www.debra-international.org

Competent supervisory authority

Landespolizeidirektion Wien, Referat Vereins-, Versammlungs- und Medienrechtsangelegenheiten.
Please find here the Austrian Association Act 2002 and the website of the Landespolizeidirektion Wien.

Purpose of the association

The association is not for profit and pursues exclusively and directly the purpose of promoting the well-being of people living with Epidermolysis Bullosa (EB).

Basic intention of this medium

Presentation and promotion of DEBRA International, as well as information regarding Epidermolysis Bullosa, EB-related research and donations.

Representation in accordance with the bylaws of the association

The President shall represent the association. Written documents of the association have to be signed by the President and by the Secretary in order to be effective. However, if financial matters are concerned (dispositions regarding assets), the signature of the President and of the Treasurer is required. In the event that the President, the Secretary, or the Treasurer are prevented, they shall be represented by their deputies.

DEBRA International Executive committee
PresidentMike Jaega (DEBRA UK)
President deputyLoreto Moore (DEBRA Chile)
SecretaryMia Werkentoft (DEBRA Sweden)
Secretary deputyAvril Kennan (DEBRA Ireland)
TreasurerShoaib Gopalani (DEBRA Canada)
Treasurer deputyBrett Kopelan (DEBRA US)
Other membersCinzia Pilo (DEBRA Italy)
Anna Kemble-Welch (DEBRA New Zealand)
Clémence Fabien (DEBRA France)
Judith Kristin Asche (DEBRA Norway)
Zlatko Kopecki (DEBRA Australia)
Ritu Jain (DEBRA Singapore)

Last update: October 2016

This site is kindly supported by Lowe GGK and Developer AT

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