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Epidermolysis Bullosa
Home Care Programme

Aspects involving work

In the exercise of a duty the following aspects should be given special attention
on the workplace:

• tell the employees and employer about the disease in order to inform them about the practical problems that are a result of the disease;

• if possible adjustment of the position or tasks to the disease (this means, for example, no work that requires walking and standing);

• starting from the capabilities and strengths of the patient;

• choosing a workplace or activities in such a way that these do not have to be performed in the sun or heat;

• let the employee use the passenger lift (if present);

• installing cushions on the seat or adapted furniture;

• installing a first aid kit on a regular place in the company and explaining employees and employer what to do in the case of emergencies;

• providing a possibility for storing the scooter mobile (if the patient uses this) car, moped or bike near the entrance.