Living with EB and want to have a say in the future of EB research?

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 Living with EB and want to have a say in the future of EB research? 
Your opinions count
 DEBRA International is looking for people living with EB to help assess research projects.

Why we need people living with EB to be involved in assessing research projects.

Up to twice a year DEBRA International invites researchers to submit their exciting ideas for new EB research. We receive research funding applications outlining plans to understand more about EB, to develop therapies or to improve quality of life with EB. The researchers must give us details of what they plan to do, how they plan to do it and how much funding they require.

We have the help of many experienced and dedicated researchers to assess these funding applications. However, we also want people with EB or caring for someone with EB to consider the applications, from the perspective of their own expertise - life with EB. If you have EB or are a parent or carer to someone with EB and would like to join our panel of 'patient reviewers', keep reading...

A little more detail

As a reviewer you may be contacted by DEBRA a couple of times per year and asked whether you would be willing to review one or more projects. The estimated time to complete a review is 2-3 hours. Details of research applications must be kept confidential and we will ask you to sign something to indicate that you understand the importance of this.

If you are interested in research, have good English and have a little bit of time to give us, please click on the link below to fill out the form so we can get in touch with you.

Go To Form

DEBRA International is the umbrella organisation for a worldwide network of national groups, working on behalf of those affected by the rare genetic skin blistering condition Epidermolysis Bullosa (EB).

DEBRA International
Am Heumarkt 27/1, 1030 Vienna, Austria · · +43 (0)1 876 40 30
DEBRA International is a registered charity: ZVR 932762489
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