The KITTZ - Home Care Programme  was developed.In order to make   knowledge more accessible to careworkers in primary health care settings and careworkers working in institutes where there is no experience,

An A to Z of topics related to nutrition in EB, written by Lesley Haynes, dietitian for EB at Great Ormond Street Hospital for Children (GOS). Sometimes light-hearted, sometimes serious,

This area is dedicated to giving access  to downloadable multilingual Information. The first title is. The Care of the New Baby with EB Initial Information
By Jacqueline Denyer

This Charter is published by the Dystrophic Epidermolysis Bullosa Research Association (DebRA) in line with the national Patients' Charter.

This area is intended to be a guide for parents and schools on the issues to be considered when a child with Epidermolysis Bullosa (EB) is of school age.

Ms Gillian SIM 
Ophthalmic Nurse Specialist
& Mr Malcolm Kerr-Muir 
Consultant Ophthalmologist