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Welcome to our News and Events section. It is our intention to use these pages to keep you informed of interesting developments from across our broad community of patients, national DEBRA organisations, medical professionals, researchers and supporters.
Have a look at the latest news or browse through our quarterly newsletters.
As to events, you will not only find DEBRA International's annual congresses here but also information on two international key events to raise awareness for rare diseases and EB: Rare Disease Day and International EB Awareness week.