• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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25.04.2017

Practical Paediatric EB for Professionals

The EB Team at Birmingham Children’s Hospital held its 9th Annual "Practical Paediatric EB for Professionals" course on 16th March.[more]

22.03.2017

Amicus Phase 3 Study in EB (ESSENCE) Nearing Completion of Enrolment

It is anticipated that patient enrolment will close in the coming weeks.[more]

24.02.2017

Viviendo con EB: presentamos a la artista Femmy Broer

Cuando nací en 1990 con EBDD, fue un golpe muy duro para mi madre. Ella tiene EBDR y le dijeron que no la pasaría a sus hijos. [more]

17.02.2017

Living with EB: meet artist Femmy Broer

When I was born in 1990 it was a shock for my mother that I have DDEB, because she was told that she had RDEB and could not pass it on to her children. [more]

09.02.2017

EB Without Borders: Building bridges, breaking barriers

September 23rd, 2016. Zagreb.As part of the EB Without Borders presentation, I detail DEBRA Singapore’s (DS) outreach work in Cambodia, India, etc. and conclude that we are not planning to engage with Pakistan yet given the socio-political challenges associated with the country. The Fates must have been listening. September 29th, 2016. Singapore, hospital, cafeteria.In the middle of a debrief...[more]