• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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31.01.2018

First National EB Meetings in India

The first international specialist meeting for EB in India. The international faculty included Professor Birgit Lane (Singapore), Dr Francis Palisson (Chile), Professor Celia Moss (UK) and 11 members of the UK multidisciplinary EB team.[more]

25.04.2017

Practical Paediatric EB for Professionals

The EB Team at Birmingham Children’s Hospital held its 9th Annual "Practical Paediatric EB for Professionals" course on 16th March.[more]

22.03.2017

Amicus Phase 3 Study in EB (ESSENCE) Nearing Completion of Enrolment

It is anticipated that patient enrolment will close in the coming weeks.[more]

24.02.2017

Viviendo con EB: presentamos a la artista Femmy Broer

Cuando nací en 1990 con EBDD, fue un golpe muy duro para mi madre. Ella tiene EBDR y le dijeron que no la pasaría a sus hijos. [more]

17.02.2017

Living with EB: meet artist Femmy Broer

When I was born in 1990 it was a shock for my mother that I have DDEB, because she was told that she had RDEB and could not pass it on to her children. [more]