• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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30-year old blond woman, smiling out of her car and presenting her driving licence


A personal milestone reached, for DEBRA Ireland Patient Ambassador

Emma Fogarty, living with RDEB, passed her driving test![more]

Composite of 6 images. (1) Family with a child with EB sitting on the woman's lap; (2) male EB patient getting a dental treatment; (3) Wounded face of a baby girl with EB; (4) Fingers with blisters and wounds; (5) Hand and lower arm of an EB patient; (6) People in a meeting room


A focus on the Centre for Human Genetics, Bangalore, India

Dr Ravi Hiremagalore reports his experience of establishing a multi-disciplinary clinic and services available for the care of EB patients in Bangalore, India[more]

Conference room, Powerpoint presentation and John Dart as a speaker on the podium


A spotlight on rare diseases for three days in Berlin

The EURORDIS membership meeting and the European Conference on Rare Diseases (ECRD) were held back-to-back in Berlin, and EB was well represented[more]

2 images; left: Arabella von Gelmini-Kreutzhof (ambassador of DEBRA South Tyrol), holding a butterfly statuette, and Isolde Mayr faccin, president of DEBRA South Tyrol, presenting a document // right: close-up of  butterfly trophies from DEBRA CR


Two anniversaries - one mission

Both DEBRA Czech Republic and DEBRA South Tyrol celebrated their 10-year anniversaries this month. We warmly congratulate them![more]

Jury meeting in a conference room


DEBRA supporting research: an update

For our current call for EB research proposals, an exceptionally high 18 applications have been received. In parallel, planning for our next research conference is underway.[more]