• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Chalkboard with "Stamina?" written on it


Unproven cell therapy from the Stamina Foundation in Italy now being re-evaluated

Leading stem-cell experts raised strong concerns about a treatment by the Stamina Foundation in Italy. It must now prove safety in a clinical trial.[more]

Collage of a photo of 2 doctors holding folders, and the covers of 3 clinical practice guidelines for EB


Five things you need to know about EB clinical practice guidelines

DEBRA International is very focused on the development of clinical practice guidelines for EB but what are they and how do they help? [more]

Screenshot of the homepage of the EB Handbook


A guiding handbook for people living with EB

Colleagues from the EB House Austria in Salzburg have developed a valuable online resource for those affected by EB.[more]

Screenshot of DEBRA Iran's website


A focus on DEBRA Iran: No EB patient should be left alone

This time, the highly committed Iranian doctor Amir Barzgar gave us valuable insights into DEBRA Iran.[more]

Research assistant Emma Batten giving information at a stand (The Royal Holloway University of London), which is decorated with DEBRA UK logo and posters


The limelight on research for Rare Disease Day

On Rare Disease Day, DEBRA International Research Manager Dr. Clare Robinson took part in some activities to highlight the importance of EB research[more]