• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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17.08.2015

Topical cream for all EB types: Clinical trial now recruiting participants

Phase 3 trial of Scioderm’s topical cream for all EB types is planned for 8 sites across Europe, as well as 6 sites in the USA[more]

Word cloud, including "Inclusive", "Involvement", "EB", "DEBRA", "Scientists", "Patients", "Therapies" etc

02.07.2015

Keeping people living with EB at the heart of research

Deciding which EB research to fund is a meticulous process: Bringing the patient voice into this ensures that people living with EB are at the heart of all we do. [more]

Group picture: Workshop attendees

01.07.2015

Guiding the guideline developers

DEBRA International is leading the development of clinical practice guidelines for EB. Those developing the guidelines are now getting useful guidance, too.[more]

Logo of the GENEGRAFT research programme

02.06.2015

Progress in developing a skin-grafting gene therapy for RDEB

GENEGRAFT project has developed a safer vector for collagen 7 gene correction, and is now planning a small clinical trial to assess tolerability and efficacy[more]

Stack of conference programmes on a table, showing an image of the DEBRA campaign: An animal half rabbit, half hedgehog; above it the tagline "This is how life feels for people with EB"

07.05.2015

EB 2015 - Insights into the EB research symposium

This key event of EB research brought together many of those committed to find a cure, or to alleviate the symptoms of EB[more]