• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Timeline (2015) showing the dates of 2 DEBRA International research funding calls


DEBRA International calls for Clinical Research and Clinical Trials proposals

Clinical Research programme funding addresses requests from clinicians and people with EB, and advances in therapy and symptom-relief research[more]

Front view of the building


Special care for butterfly children in Moskow's new EB clinic

One of the leading Russian pediatric institutions, the Moscow-based Scientific Center of Children's Health, has recently opened a special clinical department for children with EB[more]

Composite of 3 pictures; left: Portrait of a lady with short bright hair; middle: portrait of a man in his sixties; right: man in suit at a speaker's desk


Strong voices for EB

DEBRA delegates are strongly represented in US and European rare disease organisations[more]

Portrait of Michael Fitzpatrick


Michael Fitzpatrick takes on Executive Officer role

With John Dart retiring from his role on a gradual basis, Michael Fitzpatrick from Australia has been appointed as the new Executive Officer and is quickly settling into the role[more]

Screenshot of a video, showing a hand shadow


Viral rare disease video with a focus on EB

This year's Rare Disease Day video focused on supporting hands and featured a young woman with EB[more]