• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Cover of Pain care guideline; portrait of Dr. Kenneth Goldschneider


EB pain care clinical practice guideline now available

We are delighted to report that the EB pain care clinical practice guideline has been published and is available on the websites of EB-CLINET and DEBRA International.[more]

Portrait of Lea Prujean, a lady around 40, with long brown hair, and wearing glasses


Valuable EB without Borders project strengthened by new appointment

The new EBWB Coordinator, Lea Prujean, has worked with DEBRA New Zealand for nearly three years. She will now support DEBRA International, too[more]

Portrait of an about 50-year-old man in a park (green in the background)


DEBRA International Director of Marketing and Communications appointed

The new staff member, Mark Varian, brings with him a wealth of experience and is looking forward to using his skills to benefit people living with EB.[more]

Table in a surgery setting, with 5 skin sheets in plastic boxes


Junctional EB gene therapy approach, given new life in Salzburg

A patient with Laminin deficiency was recently grafted with gene-corrected skin sheets, and the transplants are healing well[more]

Facade of the memorial Church on Stanford University campus


A positive start to Stanford gene transfer study

Professor Alfred Lane and his team have begun a clinical trial to test a potential therapy for RDEB[more]