• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

donate now


2nd EB-CLINET Conference: Clinical EB experts met in Salzburg

The second meeting of the EB-CLINET network partners provided the framework to discuss EB best-practice care, registries and professional training.

This year's EB-CLINET conference was held at the General Hospital (Paracelsus Medical University) Salzburg from 17-18 September 2013, attracting 91 delegates from 29 countries across the world.

The meeting was funded by DEBRA Austria with additional sponsorship from Interspar, Flen Pharma and PolyMem. CAP Partner supported the conference organisationally.

Much focus was on carrying forward the discussions about and work on the three major work packages: EB registries, clinical practice guidelines, and professional training. Keynote lectures by the work group leaders were followed by presentations and workshops to develop ideas on future content and methodology.

Due space was also given to the presentation of clinical cases and case studies, to share and discuss experiences and treatment approaches.

The full conference report and the presentations as well as a picture gallery are now available on the EB-CLINET website.

2nd EB-CLINET Conference: group picture of participants in the conference room