• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

donate now


DEBRA Croatia proud to host the 2016 DEBRA International Conference

DEBRA Croatia proud to host the 2016 DEBRA International Conference

The 2016 DEBRA International Conference hosted by DEBRA Croatia took place from 22nd to 25th September in the beautiful city of Zagreb. The event took place on the 17th floor of the Hotel Westin which offered breath-taking panoramic views of the city.

Over 200 participants from 33 countries attended the event including delegates from 28 DEBRA groups; researchers; clinicians, nurses, and dietitians; patients; families; and industry supporters. The conference was officially opened with speeches of welcome from representatives from the Mayor of Zagreb, The Ministry of Health, and DEBRA Croatia.

Cinzia Pilo, President of DEBRA International 2015-2016 and Dr. Francis Palisson of DEBRA Chile presided over the main event, which involved a range of presentations from research advances, updates on DEBRA International workgroups such as EB Without Borders and Clinical Practice Guidelines to EB patient experiences. View the presentations. Additional discussion groups were organised for medical professionals and patients alike.

The conference also marked the 20th anniversary of DEBRA Croatia. A touching documentary film premiered at the Gala dinner detailed the journeys of DEBRA Croatia and DEBRA Slovenia paying tributes to all those who helped in their creation. Thanks and congratulations go to DEBRA Croatia member, Marko Petrovic whose daughter Nora has EB for his invaluable help in creating this film. Watch the documentary.

The conference also saw many changes to the structure of DEBRA International. The Executive Committee is now made up of representatives from 12 DEBRA groups with Mike Jaega from DEBRA UK as President of DEBRA International. Find out more about Mike. DEBRA International has also brought on a Business Manager, Liv Mullins to be responsible for the daily operations of DEBRA International. Find out more about Liv.

Huge congratulations go out to Vlasta Zmazek and all of the DEBRA Croatia team for organising such a wonderful and successful event.

Liv Mullins, Business Manager, DEBRA International
Eva Lukic, DEBRA Croatia

DEBRA International Conference 2016

City of Zagreb

DEBRA International Conference 2016

DEBRA International Executive Committee 2016-2017