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20.11.2014

DEBRA Portugal launches newsletter

DEBRA Portugal has just turned four. Since our inauguration, there has been a constant recognition of the need to share updated information.

Even with social media news sharing there was a gap that needed to be filled: a way to deliver structured, updated and relevant information to patients and families. This need led to the inaugural issue of our newsletter, which will be published biannually.

Inspired by other DEBRA newsletters, the content has been organised in several areas ranging from contributions of patients and families to the latest scientific developments. Updates on DEBRA Portugal activities, such as the EB Care Project, and on national events are also included. This is a place for sharing information, involving patients and families, and providing content that meets? their questions and needs.

Carla Sá Couto, DEBRA Portugal

Cover of the first issue of the DEBRA Portugal newsletter