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27.08.2015

EB wound dressings are a basic human right

A recent DEBRA Ireland-supported study, has taken an in-depth look at EB support services in Ireland and many of its findings are likely to be reflected across the globe.

One of the strengths of this study is that it took an inclusive approach, incorporating the perspectives, experiences, views and hopes of those delivering services as well as those receiving them.

The findings of the study revealed five priorities for future EB support services. In condensed form, these include the need to provide:

  • free access to medical treatment and dressings, as a basic human right.
  • access to specialist EB support staff, within both hospital and community settings.
  • appropriate time within the health system, for health professionals to understand the challenges of living with EB, build therapeutic relationships and prioritise treatment.
  • education, training and the potential for involvement in EB research, for all involved in support services.
  • increased awareness about living with EB and the support services required, within all levels of the healthcare system and beyond.

This study was led by Dr. Rosie Gowran of the University of Limerick, who spoke about the project at the DEBRA International Congress in Rome, 2013. She subsequently won the 'Clinical Research Associate of the Year' award at the Irish Healthcare Awards for her EB research.

If you would like a copy of the full published paper, please get in touch with Avril Kennan.

Avril Kennan, DEBRA Ireland and DEBRA International

Bandaged hands with a blue-and-orange butterfly

Two ladies: Dr. Rosie Gowran and Dr. Avril Kennan

Study lead Dr. Rosie Gowran won the Irish Healthcare Award 2013