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Patient views on the regulation of medicines

How should we weigh the risks and benefits of medicines? And who should do so? Contribute to a European research study and get your voice heard!

As part of a European research study, Genetic Alliance UK and researchers at the University of South Wales want to understand how patients perceive the risks and benefits of medicines. The work is important to ensure that patient views are valued in the regulation of new medicines. 

If you are 18 or older, and you are a patient or a carer, you can contribute to this by completing a short online survey. The survey includes questions about your experience with medicines, your view of the risks and benefits associated with medicines, and how you think medicines should be regulated. 

The survey is available in several different languages. To complete the survey use one of the links below:

Your individual answers will be confidential, and you will remain anonymous (the questionnaire does not ask for your name). The overall survey findings will be shared with other patient groups and relevant decision makers, such as regulators.

If you require any further information about the research or you would like the survey in a different format, please contact Amy Simpson, senior researcher at the University of South Wales.

If you want to disseminate information about this study in your own country and within your own rare disease community, this information is available in 8 languages for your further use:

Blackboard with feedback options "Positive" - "Neutral" - "Negative" and according smileys

Image courtesy of Grant Cochrane / FreeDigitalPhotos.net