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Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Practical Paediatric EB for Professionals

The EB Team at Birmingham Children’s Hospital held its 9th Annual "Practical Paediatric EB for Professionals" course on 16th March.

There were 20 delegates from as far afield as Norway, Spain, Croatia, Netherlands, and Australia. This year we offered free places to staff in our hospital, recognising that non-EB team members often get involved in the care of EB patients and are keen to learn more.

The emphasis is on practical management and to that end we have developed a series of highly informative teaching videos of surgical procedures (oesophageal dilatation, hand surgery, administering an anaesthetic).

However, the most popular items, as always, were contributions from our patients. Myra Ali spoke very eloquently about sensitive cultural issues such as consanguineous marriage and Amy Price, former Debra UK Trustee, together with Myra, answered delegates’ questions about her experience of living with EB.

Professor Celia Moss, Consultant Dermatologist, Birmingham Children's Hospital, UK