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    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Research conference reports

Progress in research, although sometimes seeming frustratingly slow for those waiting for something that makes a big difference to their lives, has been remarkable over the past few years. This is really very obvious if we look at the progress in our EB research that is reported at the DEBRA International research conferences that we hold every three years.

EB2006 - The prospect of a first real breakthrough treatment was reported at the conference we held in Dublin in 2006. All the excitement was about the gene therapy trial for non-Herlitz JEB, with the breakthrough success reported by Professor Michele De Luca and his team in treating a single patient by grafting patches of the patient's own skin grown and genetically corrected in the laboratory for the EB fault in the patient's laminin gene.

EB2009 - Three years on, not only did we hear that a similar gene therapy grafting approach was being developed by at least two groups, in France and in Stanford, for RDEB, but that a whole gamut of other therapeutic approaches – particularly in the cell therapy area, are rapidly approaching clinical trials.

EB2012 - It's safe to predict that at our upcoming research conference in 2012 we will hear the early-stage results of numerous trials of a wide range of therapies. There will inevitably be setbacks, with technological and other hurdles to be overcome – all medical research moves according to an unpredictable rhythm of 'slow-slow-quick-quick-slow' – but the rapid pace of translation from laboratory to clinical trial is remarkable.

Conference report EB2015, Atlanta


Uitto J. et al (2016) Progress toward Treatment and Cure of Epidermolysis Bullosa: Summary of the DEBRA International Research Symposium EB2015. Journal of Investigative Dermatology (2016) 136, 352e358

Cover of JID meeting report / EB2012

Conference report EB2012, Marbella


Bruckner-Tuderman L et al. (2013) Progress in Epidermolysis Bullosa Research: Summary of DEBRA International Research Conference 2012. Journal of Investigative Dermatology (2013) 133, 2121–2126

Cover of JID commentary about partnership of patient organisations and research community


Dart J, Riedl R (2013) 
Patient Organizations and the Investigative Dermatology Community as Partners: DEBRA and Epidermolysis Bullosa ResearchJournal of Investigative Dermatology (2013) 133, 2116-2117

    Cover of JID meeting report / EB2009

    Conference report EB2009, Vienna


    Uitto J et al. (2010) Progress in Epidermolysis bullosa research: Towards treatment and cure. Journal of Investigative Dermatology (2010) 130, 1778-1784

      Cover of JID meeting report / EB2006

      Conference report EB2006, Dublin


      Featherstone C (2007) Epidermolysis Bullosa: From Fundamental Molecular Biology to Clinical Therapies. Journal of Investigative Dermatology (2007) 127, 256-259

      Cover of JID meeting report / EB1999

      Conference report EB1999, New Jersey


      Uitto J et al. (2000) The DEBRA International Visioning/ Consensus Meeting on Epidermolysis Bullosa: Summary and Recommendations. Journal of Investigative Dermatology (2000) 114, 734-737

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