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Research News


Castle Creek Enrolling EB Simplex Patients in DELIVERS Study of Diacerein 1% Ointment (CCP-020)

Potentially disease-modifying therapy may block inflammatory signaling pathway, which could strengthen epidermal tissue and support healing.[more]


5th and 6th of December: DEBRA Austria and DEBRA UK - Wound Healing in EB roundtable meeting in London

Full Report on Wound Healing in EB Clinical Research Review and Priority-setting Consensus Meeting[more]


Amicus Phase 3 Study in EB (ESSENCE) Nearing Completion of Enrolment

It is anticipated that patient enrolment will close in the coming weeks.[more]


DEBRA International newly funded research projects

DEBRA International newly funded research projectsFrom the call for research proposals across all four of DEBRA International’s research priorities last year, several new projects have been funded.  Our ‘All-priorities’ calls allow for proposals on topics which may explore in depth the causes and consequences of EB, which can lead to breakthrough novel concepts for the diagnosis or...[more]


Strengthening the Clinical Practice Guideline initiative

Strengthening the Clinical Practice Guideline initiativeDEBRA International, in collaboration with EB-CLINET, is undertaking a long-term initiative to develop clinical practice guidelines for EB, in order to improve EB clinical care. To support progression and expansion of the initiative, a scoping project was undertaken during the period February-July 2016, to assess the needs of the different...[more]