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Research News


EB researchers break new ground with skin graft trial - what does this all mean and what happens next?

We've thought of some of the answers to questions you may have regarding this exciting research[more]


EB researchers break new ground with skin graft trial

An international team of researchers has broken new ground with a pioneering skin grafting procedure, reconstructing a fully functional outer skin – or epidermis – for a child suffering from a severe, and often fatal, form of Epidermolysis Bullosa (EB) – a genetic skin condition that causes constant pain due to unstoppable internal and external blistering. Researcher Michele De Luca and...[more]


Castle Creek Enrolling EB Simplex Patients in DELIVERS Study of Diacerein 1% Ointment (CCP-020)

Potentially disease-modifying therapy may block inflammatory signaling pathway, which could strengthen epidermal tissue and support healing.[more]


5th and 6th of December: DEBRA Austria and DEBRA UK - Wound Healing in EB roundtable meeting in London

Full Report on Wound Healing in EB Clinical Research Review and Priority-setting Consensus Meeting[more]


Amicus Phase 3 Study in EB (ESSENCE) Nearing Completion of Enrolment

It is anticipated that patient enrolment will close in the coming weeks.[more]