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Research News

29.03.2017

Full Report on Wound Healing in Epidermolysis Bullosa Clinical Research Review and Priority-setting Consensus Meeting

On the 5th and 6th of December, DEBRA Austria and DEBRA UK jointly supported and organised a Wound Healing in EB roundtable meeting in London.Here you can read the full report on the meeting aims, key points of discussion on topics including complications of EB wounds, wound management, as well as opportunities for research.Read the full report here[more]

22.03.2017

Amicus Phase 3 Study in EB (ESSENCE) Nearing Completion of Enrolment

Amicus Phase 3 Study in EB (ESSENCE) nearing completion of enrolmentAmicus Therapeutics’ ESSENCE Study of the investigational topical cream for wound healing (SD-101) in EB is rapidly nearing completion of enrolment. It is anticipated that patient enrolment will close in the coming weeks.Anyone interested in participating in the trial should contact one of the approximately 40 international...[more]

09.02.2017

DEBRA International newly funded research projects

DEBRA International newly funded research projectsFrom the call for research proposals across all four of DEBRA International’s research priorities last year, several new projects have been funded.  Our ‘All-priorities’ calls allow for proposals on topics which may explore in depth the causes and consequences of EB, which can lead to breakthrough novel concepts for the diagnosis or...[more]

14.12.2016

Strengthening the Clinical Practice Guideline initiative

Strengthening the Clinical Practice Guideline initiativeDEBRA International, in collaboration with EB-CLINET, is undertaking a long-term initiative to develop clinical practice guidelines for EB, in order to improve EB clinical care. To support progression and expansion of the initiative, a scoping project was undertaken during the period February-July 2016, to assess the needs of the different...[more]

14.12.2016

Wound Healing in Epidermolysis Bullosa Clinical Research Review and Priority-setting Consensus Meeting

Wound Healing in Epidermolysis Bullosa Clinical Research Review and Priority-setting Consensus Meeting On the 5th and 6th of December, DEBRA Austria and DEBRA UK jointly supported and organized a 'Wound Healing in EB' roundtable meeting in London. As a by-invitation event, limited to just 25 people to facilitate useful discussion and exchange of experience, the meeting brought together roughly...[more]