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    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Research News


Educational Webinar - Information about Clinical Trials

Participants have the opportunity to ask questions and learn about the various requirements that is part of all clinical trials.[more]


Haematopoietic stem cell transplantation in the Netherlands for severe generalized RDEB

A new therapy that may improve the condition is allogeneic haematopoietic stem cell transplantation (HSCT) with a survival rate of 80-85%. [more]

word cloud around the DEBRA "Clinical Research Call 2015"


Anticipated DEBRA funding of three clinical trials for severe RDEB

Expert evaluation for the Clinical Research Call 2015 has led to recommendation of three clinical trials targeting priority medical needs in RDEB[more]

Hands in white rubber gloves, filling in a form. On the form lie a few coloured pills, and in the background some test tubes.


DEBRA funding programme for clinical research and symptom relief

Expert Panel will meet in December to make funding recommendations to DEBRA [more]

Bandaged hands with a blue-and-orange butterfly


EB wound dressings are a basic human right

A recent study has taken an in-depth look at EB support services in Ireland and many of its findings are likely to be reflected across the globe[more]