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Research News

Composite of 6 images. (1) Family with a child with EB sitting on the woman's lap; (2) male EB patient getting a dental treatment; (3) Wounded face of a baby girl with EB; (4) Fingers with blisters and wounds; (5) Hand and lower arm of an EB patient; (6) People in a meeting room

04.07.2014

A focus on the Centre for Human Genetics, Bangalore, India

Dr Ravi Hiremagalore reports his experience of establishing a multi-disciplinary clinic and services available for the care of EB patients in Bangalore, India[more]

Jury meeting in a conference room

03.04.2014

DEBRA supporting research: an update

For our current call for EB research proposals, an exceptionally high 18 applications have been received. In parallel, planning for our next research conference is underway.[more]

Chalkboard with "Stamina?" written on it

02.04.2014

Unproven cell therapy from the Stamina Foundation in Italy now being re-evaluated

Leading stem-cell experts raised strong concerns about a treatment by the Stamina Foundation in Italy. It must now prove safety in a clinical trial.[more]

Research assistant Emma Batten giving information at a stand (The Royal Holloway University of London), which is decorated with DEBRA UK logo and posters

03.03.2014

The limelight on research for Rare Disease Day

On Rare Disease Day, DEBRA International Research Manager Dr. Clare Robinson took part in some activities to highlight the importance of EB research[more]

Yellow tube of Diacerein cream

13.02.2014

Promising cream for butterfly children (EBS) receives "orphan designation" status

A clinical pilot study showed that the Diacerein cream resulted in better stability of the skin and reduced the formation of blisters[more]