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Research News

Facade of the memorial Church on Stanford University campus


A positive start to Stanford gene transfer study

Professor Alfred Lane and his team have begun a clinical trial to test a potential therapy for RDEB[more]

Composite of 6 images. (1) Family with a child with EB sitting on the woman's lap; (2) male EB patient getting a dental treatment; (3) Wounded face of a baby girl with EB; (4) Fingers with blisters and wounds; (5) Hand and lower arm of an EB patient; (6) People in a meeting room


A focus on the Centre for Human Genetics, Bangalore, India

Dr Ravi Hiremagalore reports his experience of establishing a multi-disciplinary clinic and services available for the care of EB patients in Bangalore, India[more]

Jury meeting in a conference room


DEBRA supporting research: an update

For our current call for EB research proposals, an exceptionally high 18 applications have been received. In parallel, planning for our next research conference is underway.[more]

Chalkboard with "Stamina?" written on it


Unproven cell therapy from the Stamina Foundation in Italy now being re-evaluated

Leading stem-cell experts raised strong concerns about a treatment by the Stamina Foundation in Italy. It must now prove safety in a clinical trial.[more]

Research assistant Emma Batten giving information at a stand (The Royal Holloway University of London), which is decorated with DEBRA UK logo and posters


The limelight on research for Rare Disease Day

On Rare Disease Day, DEBRA International Research Manager Dr. Clare Robinson took part in some activities to highlight the importance of EB research[more]