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Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Research News

Yellow tube of Diacerein cream


Promising cream for butterfly children (EBS) receives "orphan designation" status

A clinical pilot study showed that the Diacerein cream resulted in better stability of the skin and reduced the formation of blisters[more]

Logo of E-Rare


6th E-Rare call now open

Joint call for European multilateral research projects exploring innovative therapeutic approaches on rare diseases[more]

Infographic showing how fibroblast therapy works


Phase II clinical trial of fibroblast therapy for RDEB completed

We're able to report here on the results of a recently completed project to develop and test fibroblast cell therapy for people with RDEB.[more]

3 Screenshots of app iscorEB


New smartphone app for scoring EB severity

Dr. Elena Pope reports on a new tool called iscorEB which is aimed at scoring EB disease severity.[more]

Lawrence Charnas and Lin Guey (both Shire) presenting their award; Brett Kopelan (DebRA of America) applauding


Shire recognized for commitment to DEB therapy

Shire was recently honored with one of three Partners in Progress awards at the DebRA of America benefit sponsorship event[more]