• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

donate now

Research News

Logo of E-Rare

13.01.2014

6th E-Rare call now open

Joint call for European multilateral research projects exploring innovative therapeutic approaches on rare diseases[more]

Infographic showing how fibroblast therapy works

20.12.2013

Phase II clinical trial of fibroblast therapy for RDEB completed

We're able to report here on the results of a recently completed project to develop and test fibroblast cell therapy for people with RDEB.[more]

3 Screenshots of app iscorEB

29.11.2013

New smartphone app for scoring EB severity

Dr. Elena Pope reports on a new tool called iscorEB which is aimed at scoring EB disease severity.[more]

Lawrence Charnas and Lin Guey (both Shire) presenting their award; Brett Kopelan (DebRA of America) applauding

22.11.2013

Shire recognized for commitment to DEB therapy

Shire was recently honored with one of three Partners in Progress awards at the DebRA of America benefit sponsorship event[more]

Shire logo in blue

21.11.2013

Shire's "Visiting Patient Series" focusing on DEB

Recognizing the importance of promoting education and disease awareness for Shire employees, the company's "Visiting Patients Series" programme recently included a visit from people living with EB[more]