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Research News

Shire logo in blue


Shire's "Visiting Patient Series" focusing on DEB

Recognizing the importance of promoting education and disease awareness for Shire employees, the company's "Visiting Patients Series" programme recently included a visit from people living with EB[more]

Blackboard with feedback options "Positive" - "Neutral" - "Negative" and according smileys


Patient views on the regulation of medicines

How should we weigh the risks and benefits? And who should do so? Get your voice heard![more]

Illustration of a mouse


Protein therapy development for RDEB

In a preclinical study, researchers at the USC have shown that topically applied Collagen 7 protein helps wound closure, reduces scarring and may be useful for treating patients with RDEB[more]

Cartoon of a man sitting in front of a huge pile of pills and pillboxes, looking desperate


Burden of Treatment

A new study tries to develop a tool to measure treatment burden, which is hoped to influence and shape future healthcare[more]

Mosaik of 2 images: workshop group and page with results


Asking people living with EB what they want from research

A recent study tries to understand which research issues are important to people with DEB and their clinicians, in order to prioritise the research efforts[more]