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    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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Research News

Screenshot of the video "Future of treatments for EB", showing Prof. John McGrath (King's College London)

24.05.2013

The future of treatments for EB

A video on the future of treatments for EB is now available on YouTube and EURORDIS TV[more]

Composite of 4images: Dr. Anil S. Jina (Shire) presenting at the DEBRA Ireland family day and some of the families enjoying the butterfly garden.

23.05.2013

Shire attend DEBRA Ireland family day

Global specialty biopharmaceutical company Shire, who is developing an protein therapy for DEB, presented at DEBRA Ireland's family day.[more]

Pills Spilled Around A Pill Bottle

22.05.2013

Pharmakovigilance: An active role for rare disease patients

New EURORDIS website section focusing on Pharmacovigilance helps rare disease patients report problems with their medicines[more]

Logo of IRDiRC (International Rare Diseases Research Consortium)

29.04.2013

200 rare disease therapies by 2020

The 1st IRDiRC conference brought together researchers and organisations investing in rare disease research to achieve two main objectives[more]

Group picture of the participants of the 1st EB-CLINET Register Workshop

08.04.2013

1st EB-CLINET Register Workshop

Starting point for the creation of an international EB register to facilitate patient recruitment for clinical trials, and to improve diagnostics and disease course prediction.[more]