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Research News

Logo of the European Rare Disease Organisation EURORDIS


EURORDIS Policy Discussion Meeting: "The Transparency Directive"

Faster Access to Medicines for Rare Disease Patients. Watch the meeting on 26 Feb 2013 live on EURORDIS TV[more]

Mark de Souza of Lotus Tissue Repair


Large pharmaceutical spotlight on EB

Big pharmaceutical company Shire, with strong focus on rare human genetic diseases and considerable expertise in protein replacement therapies, acquires Lotus Tissue Repair[more]

Hand holding a pipette with drop of liquid


First gene therapy approval

First ever approval for a gene therapy may pave the way for EB gene therapies[more]

Group picture of participants of EB 2012, DEBRA International EB research conference


EB 2012: DEBRA International EB research conference

Outcomes and future of EB research have been discussed and evaluated among the leading EB research teams.[more]

Icon "blue butterfly"


Cell-based therapies for epidermolysis bullosa – from bench to bedside

Journal of the German Society of Dermatology: Overview on cell-based approaches in EB that have recently been tested in pilot clinical trials[more]