21-22 July 2012, Hokkaido University, Sapporo

International patient advocacy organisations and industry partner launch first patient-reported registry for EB

There is very little awareness of EB in most Asian countries, very little specialist EB care available and few DEBRA groups. Vietnam was like this until last year… Visit to Vietnam – an EB training mission, August 2011

The International EB Awareness Week takes place October 25-31 this year. DEBRA International is pleased to broadcast its endorsement of, and encouragement for International Epidermolysis Bullosa Awareness Week, which was founded...

GSK and University of Dundee begin collaboration to develop therapies for rare genetic skin disorders.GlaxoSmithKline (GSK) and the University of Dundee have entered into an agreement to combine the pharmaceutical company's...

Dear Friends of the Rare Disease Community, With less than two months to go to Rare Disease Day (February 28), you may be asking yourself how you can participate. Well, here is how!Visit www.rarediseaseday.org Download the poster...

Lynne Hubbard won first prize in the poster competition at the Debra Internatinal conference in Chile, 16.- 18.11.2010. The podiatrist from Solihull Hospital (UK) Leigh Cotton came second; well done, EB Team UK!  Lynne did a...