An A to Z of topics
related to nutrition in EB, written by Lesley Haynes, dietitian for EB at Great Ormond
Street Hospital for Children (GOS). Sometimes light-hearted, sometimes serious, she hopes
that readers will find the topics interesting and informative. Feel free to contact her at
GOS (020-7405-9200, Ext. 5761, or on e-mail L.Haynes@ich.ucl.ac.uk) if you would like more information on any topic .
Please bear in mind that in EB,
nutritional requirements vary widely from person to person, depending on EB type and the
degree of complications. The dietary advice given here is general, and should always be
tailored to individual requirements. Excessive dietary supplementation can be dangerous,
so always check with your dietitian or doctor what supplementation is appropriate for you,
or your child's individual case. |
