• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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EB online community

Connecting EB patients globally

The Epidermolysis Bullosa Online Community was launched in 2011, in conjunction with EURORDIS and NORD, to provide an opportunity for people living with EB to network and to share experiences and ideas across national boundaries. It is part of a broader project, called RareConnect, to connect rare disease patients globally.

The community also allows personal stories to be included and contains information on EB provided by DEBRA.

This is an extremely valuable resource, tailor-made for the EB community, which provides a wonderful opportunity for support and advice from others who live with EB. We encourage you to have a look, share in discussions or perhaps start your own discussion.