• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

donate now

EB healthcare guidelines

DEBRA International is one of the few EB patient support organisations in the world leading the development of clinical practice guidelines (CPGs).

What are CPGs?
CPGs are guidelines that provide recommendations for clinical and social care. They are based on evidence gained from international research evidence coupled with opinions from professional experts and people living with EB. To accompany each newly published CPG, we are developing patient versions.

What are patient versions of CPGs?
The patient versions take the information and recommendations from the CPGs and put them into a format that is easily understood by everyone.

  • Podiatry (foot care)

    Occupational therapy

    Skin and wound care

  • Psychosocial care

    Laboratory diagnosis