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THE EYES AND EB
Ms Gillian SIM  Ophthalmic Nurse Specialist
Mr Malcolm Kerr-Muir  Consultant Ophthalmologist

Eyecare of the adult

In adulthood, eye problems appear to diminish, but some patients continue to suffer recurrent erosions and may have scarring from earlier erosions, which cause further problems.

Patients should be encouraged to take responsibility for their own eye care. If they are able to write and comb their hair, most should be able to instill their own eye drops.

Some patients decide to discontinue their lubricant eye drops when their eyes feel better. This is discouraged, since the lubricants do not cure the problem, but maintain the tearfilm and therefore help reduce the incidence of blistering.

If patients’ work involves using a computer for long periods of time, care should be taken that the concentration involved does not affect the eyes. Regular breaks from the computer, when the patient should blink with complete eye closure for about a minute. This will help combat the affects of reduced blinking and drying of the eyes which can occur.

 

Although not scientifically proven, it appears that stress and tiredness affect the tearfilm, especially at night. Many patients have stated that following a stressful/tiring period they have had more episodes of blistering than usual. Therefore, it is recommended that patients instill lubricants at night during those periods, if they are not routinely taking them.

For cosmetic reasons, or intolerance of glasses (persistent blistering of ears and bridge of nose) some patients may wish to wear contact lenses. They would need to discuss this with an ophthalmologist, experienced in patients with EB.

 

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